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FamilyGal
08-04-2007, 11:00 PM
Someone told me the other day I just needed to "get out more" and "exercise more" because I was talking about my MS symptoms. I found this on the web today and go ta chuckle out of it because it is SO true. It's actually not funny, but I'm glad someone took the time to write it. (I know at least two people on this board will know EXACTLY what I am talking about.)

MS Symptoms - What It Feels Like


When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below---

What You Can do To Understand Painful Heavy Legs... Apply tightly 20 lb ankle weights and 15 lb thigh weights then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now?

Painful Feet... Put equal or unequal amounts of small pebbles in each shoe then take a walk.

Loss of Feeling in Hands and/or Arms... Put on extra thick gloves and a heavy coat then try and pick up a pencil, if successful, stab yourself in the arm.

Loss of Feeling in Feet and/or Legs... Ask a doc for a shot of novocaine in both of your legs and then try and stand up and walk.

TN (Trigeminal Neuralgia). ..Take an ice pick and jam it into your ear or cheek whenever the wind blows on it, or a stray hair touches it. If you want something easier to do, get someone to punch you in the jaw, preferably daily.

Uncontrollable Itching... Glue or sew small steel wool pads to the inside of your shirt, pants and undergarments wear them for an entire day.

Tingling... Stick your finger in an electrical socket - preferably wet.

Tight Banded Feeling... Put 12 inch wide belt around you and make is as tight as you can and leave it there for the entire day.

Shots... Fill one of our spare needles with saline solution and give yourself a shot every time we do our shot.

Side Effects From the Shot... Bang your head against a wall, wrap yourself in a heating pad, wrap your entire body with an ace bandage tightly then finally treat yourself to some spoiled food or drink.

Trouble Lifting Arms... Apply 20 LB wrist weights and try and reach for something on the highest shelf in your house.

Spasticity... Hook bungee cords to your rear belt loops and rear pant leg cuffs then for your arms hook bungee cords to your shirt collar and cuffs on shirt sleeves then go dancing.

Poor Hearing/Buzzing in Ears...Put a bee in each ear and then put a plug in each one...bzzzzzzzzzzzzzzzzzz

Balance and Walking Problems... Drink 100 proof grain alcohol and then sit and spin in an office chair for 30 minutes, now try and walk.

Urgently Needing to Pee... We put a .5 liter remote controlled water bag and drip tube in your pants, we point out 2 restrooms in a crowded mall, then we tell you that you have 30 seconds before we activate the water bag (by remote control) to get to a restroom. Just for spite we may make that 20 seconds without telling you.

Bizarre and Inexplicable Sensations... Place tiny spiders on your legs or arms and allow them to periodically crawl around throughout the day.

Pins and Needles... Stab yourself repeatedly with needles all over your body or better yet....Get a large tattoo.

Dizziness (Vertigo)... Get on a gently rocking boat all day and all night and take several walks around the deck.

Fatigue... Stay awake for two full days to induce incredible fatigue and then cook dinner, clean the house, walk the dog and see how you feel.

Bowel Problems... Take a 4 day dose of an anti-diarrhea medicine followed directly by a 3 day dose of stool softeners for a minimum of 3 weeks, at the end of 3 weeks sit down on a hard uncushioned chair and stay there till tears appeared.

Burning Feeling... Make a full pot of boiling water and then have someone fill a squirt gun with the boiling water and shoot it at yourself all day long. However, you can give us the pleasure of shooting you instead...optional of course.

Intention Tremor... Hook your body to some type of vibrating machine try and move your legs and arms.....hmmm are you feeling a little shaky?

Buzzing Feeling When Bending Our Heads to Our Chest (L'Hermitte's)... Place an electrical wire on your back and run it all the way down to your feet, then pour water on it and plug it in.

Vision Problems (Optic Neuritis)... Smear vaseline on glasses and then wear them to read the newspaper.

Memory Issues... Have someone make a list of items to shop for and when you come back that person adds two things to the list and then they ask why you didn't get them. When you come back from shopping again they take the list and erase three things and ask why you bought those things.

Foot Drop... Wear one swim fin and take about a 1/2 mile walk.

Depression... Take a trip to the animal shelter everyday and see all the lonely animals with no home. You get attached to one of the animals and when you come back the next day you come in while they are putting her/him asleep.

Fear... Dream that you have lost complete feeling in your feet and when you wake up wiggle your feet, just so happens they don't move. Think about this every night wondering whether something on your body won't work the next day.

Swallowing... Try swallowing the hottest chili pepper you can find.

Heat Intolerance or Feeling Hot When it's Really Not... You are on a nice vacation to Alaska. It's 35° outside and 65° inside. Light a fire for the fireplace and then get into it. Once you have reached about 110° tell me how you feel, even a person without MS would feel bad, now add all of the above symptoms - welcome to our world.

And Finally... After subjecting yourself to the items above, let everyone tell you that you are just under a lot of stress, it's all in your head and that some exercise and counseling is the answer.

(Please note that I didn't write this and don't know who did)

11Linda11
08-04-2007, 11:23 PM
Wow, that is really powerful.

I think that there should be a footnote. Thankfully, not every person with MS gets all these symptoms. Thankfully, many people do well with MS and lead pretty normal lives.

I know quite a bit about it. I used to take care of a lady with MS.

FamilyGal
08-04-2007, 11:49 PM
Thankfully, not every person with MS gets all these symptoms.

I am COUNTING on that. ;)

mdonn76405
08-05-2007, 08:49 AM
FG,
I have to live in pain everyday, but nothing like you. Mine will lessen with medication and more surgeries. My hat is off to you that you continue to push on. God Bless you, and I hope you have all the happiness in your life that life can give you.

Mike

FamilyGal
08-05-2007, 01:18 PM
Thanks, Mike. My brother-in-law lives with really bad back pain and I have a good friend that does as well. So far, I don't have pain EVERY day, so I am VERY grateful. Having pain so often really wears you down. Physically and emotionally. As I'm sure you are already very aware of.

mdonn76405
08-05-2007, 04:08 PM
I find that every time I think I have bad, I Realize someone else has it worse. I'm just glad to be alive with good family and good Friends. And good people like you.

FamilyGal
08-05-2007, 04:52 PM
I find that every time I think I have bad, I Realize someone else has it worse.

I try to do the same thing. It's all about perspective. There are SO many people who have it worse than me and they aren't even sick!

Thanks for the kind comment! I woke up feeling like crap and already feel better. Half of the battle for me is emotional. When the physical symptoms hit, the emotional part comes into play as well. Thanks for reminding me what I should be grateful for.

We are headed over to friends who called us up first thing to come over and have dinner and enjoy their pool. We are so blessed right now with several really good friends. That, and spending time with the family.

It's all good. (Now, remind me of this tomorrow when I wake up feeling like crap again...LOL)

mdonn76405
08-05-2007, 05:05 PM
I will. Enjoy your afternoon.

cgwoolf
08-06-2007, 07:28 AM
FG, if this isn't being too nosy...do you have these kinds of pains/sensations daily/all the time? Or are there times they leave altogether, only to return with a vengence? Just trying to learn more about this awful MS.

FamilyGal
08-06-2007, 03:46 PM
I have something, to some degree all of the time. The most recent symptom I have feels like a 400 lb gorilla squeezing my ribs. Like a bear hug. It is something completely new and very weird. The pain is from the outside, not the inside. At first I wondered if it was something like an anxiety attack, but once I looked it up and spoke with my doctor, it was confirmed as a common MS symptom.

For the most part, I just have back and leg pain. Occasional eye pain, blurriness and facial numbness. That comes and goes. I have had temporary blindness before, but it passed quickly.

Most of the symptoms are more annoying than painful. I will have what feel like lead feet. That doesn't hurt, just makes it hard to walk sometimes. I know I shouldn't complain because most of the time the pain isn't too bad. It just wears me down. The worst part to me is that I look normal, so I feel like everyone thinks I am whining when I say something. So, I rarely say anything unless someone notices and asks. The only time it is really noticeable are on the days I have to use a cane. Which are few and far between THANKFULLY.

Bonkers
10-12-2007, 08:32 AM
Family - how were you diagnosed? If you don't mind me asking....my mother has gone through years of testing and has MANY of the symptoms. She jsut was sent to the neurologist this week and is awaiting test from an EEG (maybe?) or something that she had to stay awake for 24 hours for.

I'm so worried for her and the shuffling her from one specialist to the next is draining her financially and emotionally. She is beginning to doubt her own mind. :( She finally asked this last dr about MS after I showed her all the homework I had done on the internet and the dr told her it was a catch all diagnosis and that he even thought he had it in college. Ughhhh, not a good answer in my opinion! (they always seem pissed off if you do your own homework and try to ask about different possibilities)

FamilyGal
10-12-2007, 09:15 AM
With several MRI's and a Spinal Tap. Along with you they look at your medical history (obviously). One of the main symptoms I had that was a red flag (but apparently not at the time to the doctor I saw) is that I went temporarily blind during my pregnancy with the twins.

FamilyGal
10-12-2007, 12:02 PM
It is the amazing the stories I hear of people trying to get a diagnose when they have every symptom pointing to MS. Unfortunately, MS seems to be so vague at times as well. It seems that every single patient has completely different symptoms. Weird ones too.

I have been told time and time again that I was so fortunate to have gotten such a quick diagnosis. (And, I wasn't even looking for a diagnosis of anything. I went in for something else and my neurologist's partner happen to see my MRI and requested further testing.)

Looking back, I can see "flare-ups", but since they come and go, I never really persisted in finding out why a certain thing happened, since they left and never came back. (Like the blindness, for instance. They just told me it must have been from high blood pressure and having multiples. I was naive enough to be satisfied with that answer. As long as my sight came back, I was a HAPPY camper.)

I hope she finds answers. I can certainly understand not having a direction to go in would be extremely frustrating. Not to mention, she isn't getting the treatment shots if she does have MS.

Sysgoddess
10-13-2007, 10:53 PM
Some of those I can relate to even without MS. My issue is Crohn's Disease and the fatigue and pain are sometimes almost unbearable so I can't imagine what yours must be like, FG.

IndianSpringsGuy
10-13-2007, 10:53 PM
Family, that is an impressive list of problems you listed. I have a friend who was diagnosed (I probably already told you this) with MS in the Navy. He was discharged abou the age of 21. He is now in his 60's after living with it all these years. He has many problems sleeping, so he is up all hours of the night and day, cat napping generally. He was a very smart person in college and made high grades in his major of chemistry. After the Navy, he went into replairing electronic equipment in his home. Never had much of a career but worked Ham radio as a hobby and leveraged his sleeping problem to communicate all over the world. He had quadruple bypass surgery a few years back and is wheel-chair bound now, but still travels to various states in the south. He has overcome and overcome all his life.